Hey y’all. It’s been a while.
I’m sitting on our new couch, in our new place, listening to disc 1 of 4 of *one* of my Ella Fitzgerald collections, thinking about the calls and paperwork I have to do today but I’ve been promising myself all week that I was going to make a blog post. It’s Friday, I’d best get on that.
So. Sometimes I like to think that I’m fairly intelligent and body-aware and all that jazz (see what I did there – ha). Then sometimes my body has to scream at me, especially when my stubborn, head-down, plough-through attitude is over-talking the gentle “Dear, stop.”
After two one week vacations this summer where I finished them off with a night where I kept myself from sleeping due to the anxiety of returning to work and all that would hold. Given my current medical mystery, the things I was anticipating were great – such as the feeling that I’m wearing a mask of pins (to clarify, pointy side down towards my skin), that feeling creeping into my arms and legs on a really bad day. Not to mention the dizziness, feeling like I have blisters on the underside of my eyelids (I don’t as far as I can tell), and a brain that constantly was feeling like I was trying to run an electrical current through porridge (usually how I feel post migraine).
It took me hitting the verge of tears at my desk, and a friend who also was telling me about her struggles and shrugging off crying at her desk as a part of a normal workday until someone convinced her that wasn’t right, to have me make the call.
I can’t do everyday work right now and try to fix whatever is wrong with me.
And I’m sure a lot of people around me sighed in relief, glad I finally came to the conclusion they’d known for months. Those people include my husband, who bears the brunt of it and only gets frustrated at my stubbornness occasionally… All the way to my RMT, who has felt like we were in an episode of Groundhog Day since I began seeing her in January, I am sure.
So I went to see my GP, and she wrote me a note of medical leave until “at least December 1st”. Thanks to a supportive manager and a workplace advisor, I’ve been navigating the system since.
I had another neurologist appointment a couple of weeks ago, and she has ordered an MRI. We’re playing with my meds again. I’m in another experiment right now – I’ve added the new medication two weeks ago, and tonight I’m supposed to increase the original medication again on top of that. But my neurologist had mad respect for the treatment my RMT has been doing (and that I’ve been undergoing it – TMJ massage is not for the faint of heart, or the easy gag reflex). And the good news was that the difference of one week on the new med (which I don’t think can be a forever medication) is a drastic reduction in the tension (therefore pain) in my jaw and face from two weekends ago to last weekend. So much so that we bumped my next (weekly) RMT appointment back another week to see how I’m doing.
It didn’t help that we moved house over Thanksgiving weekend, shortly after I officially went on leave. It didn’t help that I didn’t have any more sick leave because I’ve had to be away so much (and my previous job had me so stressed that I basically was sick every month with a new cold or flu – stress does depress your immune system). I’m on leave without pay right now, trying to get a bit of coverage. That’s the paperwork that has to happen today.
So when I didn’t perceive any prickling yesterday, it was awesome. I have some today – right now pins are prickling my cheekbones, the outer corners of my eyes and a bit on my top lip. It’s been pretty light this week, though I’ve still been having headaches.
One of the pieces of advice I got from my therapist, who has been trying to help me work through all of this, was to go for walks so that I actually leave my house. I’m not super great at just making them walks and not multi-tasking. But I have been able to take some photos of the beautiful, colourful autumn we have been having.
I still think about work. I wonder how people are, how my stuff is going. But I’m trying to do things that will make me healthy again and I’m trying to be mindful so that I can accurately report to my doctor what I’ve been experiencing.
So that’s where I’m at. I feel like I’m not really interesting right now but I’m doing what I can to try to heal myself. I thought for a moment about doing NaNoWriMo but that gentle voice said “No, dear. Not this year.” And I listened.
I’m going to go and make those calls and do paperwork now, and maybe play some piano for a bit. Then, I’ll go for a walk to drop off some dry cleaning and try to take another few photos of something interesting.
Happy Friday, everyone. :)